The Future of Rare Disease Clinical Trials

4 March, 2014, by ClinCaptureTeam

The folks over at Total Orphan Drugs, a hub for strategy and innovation for the orphan drug and rare disease industry, have put together a selection of what they believe lies in the pipeline for rare disease clinical trials for 2014. Their infographic below provides insight on adaptive clinical trials, electronic patient recorded outcomes (ePRO), placebo controlled trials, crowdsourced clinical research, and patient recruitment.

In particular they state the benefits of Electronic Data Capture (EDC) for clinical trials, such as increased data quality, reduced analysis time, and the fact it allows researchers to analyse data continuously (something crucial for successful adaptive trials).

We’re thrilled that they feature ClinCapture’s recently released video overview, suggesting ClinCapture as an alternative to costly proprietary EDC systems. For those not in the know, ClinCapture is an open source system meaning it has no licence fees and can be used for free. It is particularly suited for small-sized clinical trials such as those for orphan drugs.

For some real-life examples, check out our customer stories to see how ClinCapture could work for you!

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Infographic originally produced and published by Cameron of Total Orphan Drugs

Despite holding a degree in philosophy, I’ve a taste for the scientific and the experimental. With interests in innovation, experimentation and business strategy within the life sciences you will find me writing for Vaccine Nation, Total Orphan Drugs, and Total BioPharma.

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